I am a mother of two. One going on 13 who has been diagnosed with PDD-NOS with characteristics of Asperger Syndrome. It took me almost 10 years to get a diagnosis. Some of the reasons being having no knowledge, having no network or support, doing years of personal research on my own and most of the doctors we visited knowing less about autism than I did. During the 10 years of personal search and research I've met a lot of really helpful and wonderful people. However, only two of these individuals were black. I found and still find it amazing how none of the black people I know or interact with whether in a personal or business setting know very little if anything at all about autism. I've met and networked with many individuals who have helped me along the way to find out information, resources, my legal rights, programs, etc. None of them black. I'm sure there has to be many black families dealing with this disorder. Why are we not talking about it? Having family members with autism spectrum disorders is a mountainlike challenge. We need all the help and support available. Also being able to exchange information, resources and support with individuals who have similar cultures and experiences is very helpful and comforting.I also notice there are not many black organizations or support networks available to families with autism. I've observed the network, support and commraderie amongst the associates I've garnered, who are not people of color. They really work hard to help their children lead quality lives as best they can. They are avid researchers and share information with one another. They're not waiting for someone to do the work for them, they are rolling up their sleeves and creating outlets, programs and experiences for their children. I'm not saying that black women are not. I'm just asking where are they?I see many black individuals in the entertainment business who have children with autism spectrum disorders who are taking a very active role and voice about autism, and looking for ways to assist and support. I've also found one organization, runned by a black attorney in Atlanta, www.specialneedsnetwork.com. However, being an avid researcher the silence amonst the black community is almost deafening.Why aren't black women/mothers talking about autism? I'd like to know. I'd like to network with other women of color who care for children with autism and to be of assistance by sharing what I've learned.CHECK OUT MY BLOG: BLOG.SISTERSTALKINGABOUTAUTISM.COM
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